The latest episode of The Elevator Pitch features a powerful conversation between Hugh Williams and Patrick Livney, founder of Cure CMT. Livney breaks down Charcot Marie Tooth disease in plain terms the MS of the peripheral nervous system and outlines a two-track plan to help patients now while accelerating the first effective treatment.
Cure CMT will fund braces and indicated surgeries today, while running a venture-style model inside a 501(c)(3) to back biotech and pharma projects with accountability, milestones, and aligned economics. Livney’s playbook comes from transforming legacy nonprofits with business rigor and from his own journey diagnosed at 16, warned he would be in a wheelchair by 30, then building and selling a 25 billion AUM asset manager and finishing a Spartan race with carbon fiber braces. His core lesson stays the same protect the last name with integrity and leave the next generation better than yours.
Cure CMT will fund braces and indicated surgeries today, while running a venture-style model inside a 501(c)(3) to back biotech and pharma projects with accountability, milestones, and aligned economics. Livney’s playbook comes from transforming legacy nonprofits with business rigor and from his own journey diagnosed at 16, warned he would be in a wheelchair by 30, then building and selling a 25 billion AUM asset manager and finishing a Spartan race with carbon fiber braces. His core lesson stays the same protect the last name with integrity and leave the next generation better than yours.
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